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Hi, I’m Fleur, a mom of two, passionate about raising awareness of PACS1 syndrome, a rare genetic syndrome which means my daughter has a severe learning disability, how it affects my daughter and us as a family, and how the heck we move on now my daughter is a young adult. Thanks for visiting!

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About Me

Hi, I’m Lillie. Previously a magazine editor, I became a full-time mother and freelance writer in 2017. When I’m not spending time with my wonderful kids and husband, I love writing about my fascination with food, adventure, and living a healthy and organized life!

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